Saturday, November 22, 2008

Pulmonary Hypertension Association

The second online community I recommend for those wanting to learn more about pulmonary hypertension is the Pulmonary Hypertension Association.

I especially like PHA's site because the medical information is up-to-date and accurate and approved by a panel of medical professionals. PHA's mission is to educate the public about pulmonary hypertension and to obtain funds for PH research. The web site offers information to patients, medical professionals, caregivers, and the media.

Members of PHA are supporting expanded research and education, building awareness of PH and public support, and changing the history of this illness. By expanding its membership, PHA can do much more, much sooner. Membership benefits are listed here.

PHA hosts an International conference every two years. It is a gathering of patients, caregivers, medical professionals, and exhibitors. The most recent conference was June 2008 in Houston. I attended the gathering and was amazed at the atmosphere: PH doctors and patients openly shared on a social and professional level. I learned more than I ever thought possible. PHA records the sessions, and this year the recordings are available online.

One of PHA's goals is to establish a support group in every state, and their staff has been extremely helpful in assisting me with the Wyoming group.

The Pulmonary Hypertension Association, in my opinion, is an excellent organization.

If at all possible, join PHA or send a donation to help find a cure to pulmonary hypertension.

1 comment:

  1. Good one Nancy -- "you really done good". I also love your newsletters -- keep up the good work.

    Smile--it's contagious


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