Monday, November 10, 2008

PH Awareness in Wyoming

I am a leader for the Wyoming Pulmonary Hypertension Support Group. Our group started in April of 2008, and currently, we have 20 members scattered throughout the state.

Contrary to the national PH statistics, 35% of our members are men. A majority of our members are in the 40 - 65 age range.

Two members have idiopathic pulmonary hypertension (no known cause for the PH) and eighteen have PH that is secondary to other diseases, ranging from sleep apnea to scleroderma.

Three members are treated with Flolan, an continually, infused medication. Two use Remodulin, a subcutaneous, infused medication. Others take Revatio and Tracleer (oral medications), beta-blockers, and calcium channel blockers. Nearly every member has or is currently using oxygen.

Everyone is grateful for the current PH medications because prior to 1995, PH had no treatments and a diagnosis was literally a death sentence. Research is on-going and great progress is being made. It is every PH patient's hope that a cure will be discovered soon.

Wyoming Support Group newsletters are available online.

If you chose to view the a scrapbook of the Wyoming PH Support group, just click below. Please be patient, it may take some time to load.

Click to play PH Awareness in WY
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